Dementia Data

Many data centers are available, but data is still lacking for many types of dementia. The list below is not exhaustive, but can be helpful as you look for data. If you have any questions, please fill out this form.

Utah ADRD currently participates in the Behavioral Risk Factor Surveillance System (BRFSS) run by the Centers for Disease Control and Prevention (CDC). We use the Subjective Cognitive Decline (SCD) and Caregiver modules. 

Other databases include:

• Alzheimer’s Association facts and figures
• CDC Alzheimer's Disease Program
• U.S. POINTER Study
• World Alzheimer's report 2025