Dementia Data

Many data centers are available, but data is still lacking for many types of dementia. The list below is not exhaustive, but can be helpful as you look for data. If you have any questions, please fill out this form.

Utah ADRD currently participates in the Behavioral Risk Factor Surveillance System (BRFSS) run by the Centers for Disease Control and Prevention (CDC). We use the Subjective Cognitive Decline (SCD) and Caregiver modules. Infographics for these can be found here. You can also find Utah-specific data on the Public Health Indicator Based Information System (IBIS) for ADRD and caregiving.

Other databases include: